tag:blogger.com,1999:blog-8621317379873499702.post2094673118711665671..comments2024-01-14T03:48:36.601-05:00Comments on Fauquier ENT Blog: Laryngeal Sensory Neuropathy (LSN) Chronic Cough Treatment FailureFauquier ENThttp://www.blogger.com/profile/18011731559130483399noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-8621317379873499702.post-35366130267846163022017-12-03T23:04:58.791-05:002017-12-03T23:04:58.791-05:00I don't know if this information will be of us...I don't know if this information will be of use to anybody... My wife after suffering from chronic cough for 8 years and many many doctors (and drugs) who were all apparently ignorant of LSN had lacrimal tear duct drain plugs made of collagen inserted into her tear ducts drains by an eye doctor for the treatment of her chronic cough-The effect was instantaneous-her cough was cured!!!-or so we thought... So she proceeded a few days later after the collagen plugs dissolved to have the recommended more permanent laser surgery done to her tear duct drains. Worked wonderfully for about three weeks and then the cough gradually returned as bad as ever and now her eyes are constantly watery.... Though I am no Doctor I would see no harm in having "removable" lacrimal plugs installed for anybody just looking for some much needed possible temporary relief as it was quite dramatic in my wife's case. Or possibly of use for doctors in a diagnosis of LSN? Lastly, Just last week she had an ear nose and throat doctor tell her that there is nothing wrong with her and maybe she should see a psychiatrist as she may have had some underlying childhood trauma that was the likely cause!!! HA! Steve Ewingnoreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-63341129212899574082017-07-07T13:33:59.013-04:002017-07-07T13:33:59.013-04:00I Am too. did you have any luck, Cougher?I Am too. did you have any luck, Cougher?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-78744690193873022152017-03-30T20:40:17.221-04:002017-03-30T20:40:17.221-04:00hi, i've had cough 14yrs and suffer blackouts ...hi, i've had cough 14yrs and suffer blackouts and throat spasms, vomiting, choking etc. I've had every test, meds and still have cough. I live in ireland don't seem to be able to find anyone who deals with LSN, any help would be greatly appreciated. thank u Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-62917921537391529072017-03-13T15:41:58.974-04:002017-03-13T15:41:58.974-04:00Looking for a doctor in Ontario (preferably near O...Looking for a doctor in Ontario (preferably near Ottawa) that would treat LSN a.k.a. PVVN a.k.a. SNC in the ways that Drs. Kaufman (NYC) Chang (Virginia) and Bastian (Chicago) treat it... ie with amitryptaline or gabapentin trials.Cougherhttps://www.blogger.com/profile/05253732146501314737noreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-6151357821968654712016-08-15T19:35:57.114-04:002016-08-15T19:35:57.114-04:00Yes, Elavil (25-50mg depending on severity of coug...Yes, Elavil (25-50mg depending on severity of cough; also, I always take generic Elavil...amitriptyline) always tends to get rid of my neuropathic cough within 1-2 weeks. I go off the amitriptyline after a couple months. Usually the cough will stay away for a few weeks or months after I quit the amitrip, and then I'll have to resume it. For me, it does not "cure" the cough..meaning the cough will return eventually once I stop the amitrip. If I were to stay on the amitrip indefinitely it would keep the cough from returning. I just like to take a break from amitrip because of the side effects it causes for me. I imagine it can "cure" some people if they've been on it long enough, maybe by calming the vagus or laryngeal nerves (I'm not a doctor, just guessing), but for me the nerve seems to be so sensitive and irritated that it may always be a problem for me if I'm not on amitrip. I hope the Elavil gave you relief- I know how incredibly frustrating this type of cough can be.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-38379048039248771202015-11-11T23:31:57.480-05:002015-11-11T23:31:57.480-05:00anyone had the cough go away? or at least cured by...anyone had the cough go away? or at least cured by elavil?Anonymoushttps://www.blogger.com/profile/01810826398572260786noreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-32137235852733052482015-11-11T23:31:12.644-05:002015-11-11T23:31:12.644-05:00has anyone had episodes that resolve of neuropathi...has anyone had episodes that resolve of neuropathic cough? ive had six that lasted months but this one is more intense. started elavil. anyone cured by it?Anonymoushttps://www.blogger.com/profile/01810826398572260786noreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-11271395132553974982015-10-31T20:43:27.941-04:002015-10-31T20:43:27.941-04:00If you can't find an ENT or a GI doc who is wi...If you can't find an ENT or a GI doc who is willing to think outside of the box, you might want to see a psychiatrist. (No, I'm not saying that you're crazy.) Elavil is also used to treat anxiety. In fact, that's its main purpose. You might have better luck getting a psychiatrist to write you an Rx for Elavil, if you're getting dismissed by the ENT and GI docs. Desperate times call for desperate measures. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-69780411246936716302015-04-02T10:32:35.385-04:002015-04-02T10:32:35.385-04:00Like the poster from June 8, 2014, I am looking fo...Like the poster from June 8, 2014, I am looking for someone in Michigan who can help me with my LSN. I will go anywhere in Michigan! I am in the Grand Rapids area but cannot find a doctor to help. I do have allergies and LPR, and saw Dr. Jamie Kaufman in NYC 5 years ago where I learned I have LPR and post-viral vagal neuropathy, but I can't go back to NYC and I can't find anyone in my area who can/will help. I have seen ENTs and GI docs but the idea of LSN keeps getting poo poo-ed. I am currently coughing non-stop - like every few seconds - and it has shut my life down. Ugh. Thank you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-50094679854661019102014-08-21T13:46:14.482-04:002014-08-21T13:46:14.482-04:00I was recently diagnosed with LPR and have had a p...I was recently diagnosed with LPR and have had a persistent cough for 4 months. I was put on Nexium for 3 months and have changed my diet, but so far I have had no relief from this horrible cough. My next step is to look into LSN. The ENT Dr. I went to told me my cough was caused by reflux, but said he saw no damage to my throat. I have been very frustrated and not had much help with getting better or a treatment. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-21933024262722956322014-06-08T23:45:55.461-04:002014-06-08T23:45:55.461-04:00Can you recommend any skilled practitioners in the...Can you recommend any skilled practitioners in the Detroit area as knowledgeable as you or more in this matter who will take this seriously and understand the nuances of LPR,NA Reflux, and LSN. I have never heard any of my doctors, dentists, or specialists mention LSN or NA reflux EVER and I seriously want to fix my physically declining and psychologically defeating chest and voice issues which sound extremely similar to everything you are saying here. Albutorol doesn't work. Prilosec helped for a while, but seems to be less and less effective years later to the point of pointlessness. And ceterizine doesn't do much of anything. Is there a word to define this specific type of ENT who focuses on such issues? If not, why has it never been mentioned to me that it could be a nerve issue?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-91774749382912236442014-03-01T19:10:26.747-05:002014-03-01T19:10:26.747-05:00I am an otherwise very healthy 38 year old male th...I am an otherwise very healthy 38 year old male that has been suffering on and off from a diagnosed Sensory Laryngeal Neuropathy. It came about because of a freak accident 1 year ago when a cold pill was stuck in my throat for several hours. Ever since, I get a stabbing globus sensation right in the area where my adam's apple lies. I only cough when the globus sensation is very pronounced such as after drinking coffee or eating spicy foods. Initially,my globus was so severe that I could not work for 3 months (I am a technical Instructor). The greatest discomfort was insatiable gag reflex. I had to lie down most of the time to get relief. I took 2400 mg of Gabapentin for 2 months but could not tolerate the side effects. I was about to begin my Elavil treatment but instead decided that TIME would be the best medicine. Then magically, after 6 months, it went away (Only for me to acquire a Perilymphatic Fistula that still persists today.... I continue to believe that some how both ailments are somehow related....via the VAGUS nerve or reaction to extreme stress perhaps!) I was free from globus for about 6 months...then about 3 weeks ago. It came back! Why did it come back? I would assume the hyper sensitized laryngeal nerve heals in a linear fashion incrementally getting better. I am perplexed as to why it returned. Any thoughts? Suggestions? Anonymoushttps://www.blogger.com/profile/11657836975497962540noreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-80237990557827423132013-11-20T21:32:37.972-05:002013-11-20T21:32:37.972-05:00For 40 years, I have had a cough that starts and w...For 40 years, I have had a cough that starts and will not end for weeks, months or longer. I've seen at least 12 ENT's and other doctors to get an answer into what caused my cough. A couple months ago, I managed to stop the cough by almost 100%. How? The past few years the cough has been mild compared to other periods in the past 40 years. I have bad sacroiliac joints and had been prescribed 50mg of amitriptyline to help with nerve pain and to help with sleep. I had my sacroiliac joints fused a couple years ago and decided to ween myself off the amitriptyline in the spring of 2013. At the same time, the persistent cough returned with a horrifying vengeance. All of this summer was spent coughing and not feeling well. Reading through the years of comments on this page brought me to an undeniable cause of my cough: laryngeal sensory neuropathy. It had never occurred to me that the cough had been somewhat controlled by the amitriptyline I'd been taking for several years. I still had some amitriptyline pills and a refill, so I started to experiment with increasing the dosage beyond 50mg. 75mg worked better to control the cough, and 100mg worked even better. I actually had just seen an ENT a week or two before discovering the cause of my cough. So I wrote him a letter explaining that I had found a solution to my cough and made a new appointment. He agreed that laryngeal sensory neuropathy was a correct diagnosis and was happy to prescribe 100mg of amitriptyline per day. I'm 51 years old and have spent thousands and thousands of dollars on doctors, medications, tests and sinus surgery for my cough. But those days are over now. I'm thrilled not to cough or to fear the next recurrence of the dreaded cough that wouldn't go away. For me, the irritation was only on one side of my throat. The amitriptyline does cause an irritating dry mouth at 100mg a day. The ENT did say that I could ween myself off the amitriptyline until the next time the cough started again. I'm absolutely THRILLED to live life without the horrible cough, so I'm also a bit reluctant to stop taking the amitriptyline. I read some comments on this thread from people expressing a reluctance to take an anti-depressant for the cough. It's necessary to understand that medications like amitriptyline are used for other purposes. For me, amitriptyline has been used to treat nerve pain (sciatica) and for my laryngeal sensory neuropathy. I could care less what the purpose of amitriptyline happens to be, because IT WORKS. My cough is gone!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-14744973635464766222013-11-20T19:03:24.555-05:002013-11-20T19:03:24.555-05:00But what if your cough returned to be as bad as BE...But what if your cough returned to be as bad as BEFORE taking amitriptyline even though it may have helped initially? For those who experience this situation or the cough does NOT get better with amitriptyline, that's who this article is meant for. Your particular situation is probably purely due to LSN without other issues. As such, stating treatment for allergies or reflux is ridiculous is unwarranted.Fauquier ENThttps://www.blogger.com/profile/18011731559130483399noreply@blogger.comtag:blogger.com,1999:blog-8621317379873499702.post-8981621560460149812013-11-20T18:46:44.156-05:002013-11-20T18:46:44.156-05:00I was diagnosed with LSN a few months ago (after r...I was diagnosed with LSN a few months ago (after reading about it on the internet). My cough has been a recurrent problem for about 40 years. Treatment with 100mg of amitriptyline once a day has stopped more than 95% of the cough symptoms. Adding treatment for "allergies" or "reflux" would be ridiculous. My ENT also agrees with that. I've had multiple diagnoses over the past 40 years and one sinus surgery. The success of my current LSN treatment is definitely a life-altering success.Anonymousnoreply@blogger.com